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I couldn’t read your post properly because I kept crying thinking of my niece who’s the same age. My niece means the universe to our family and I love her as much as my own baby. You are a remarkable person. I don’t have much to add, just want to throw in another voice to the chorus that Top Jules Serious Gourmet Shit Shirt. Things will get better, and you will figure a way out of this that works. And you deserve it. I don’t have much more advice beyond what you said you’re doing: save money, prepare for being the best support you can. I know it won’t help when you’re in the thick of it all but try to remember we’re only as strong as our supports. Some p]eople are strong because they had to be, others were taught to be. You are doing what you can with your abilities, your mum is too, so is Mary.
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We connect with our supports but these are sometimes fragile, conditional. Some of us just don’t have much left. If nothing else you care very deeply about another existence and you are a support for them. Remember what supports you and Top Jules Serious Gourmet Shit Shirt. I know right, one of my family’s cats was a great mother and the other a horrible and neglectful one. Do you think the bad mom felt guilty? Nope. Actually another cat stepped in for her to at least sit with the babies (They’re all neutered now-farm life).
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I encourage you to find a down syndrome support group to help you deal with the stress, and offer you guidance on how to. Improve your and your sister’s quality of life. I’m in two separate Facebook support groups that are wonderful. And have the best recommendations for so many Top Jules Serious Gourmet Shit Shirt. But I’m ashamed to come forward with my problems unless it’s anonymously like this. And there’s always the risk of it somehow circulating back to my mom which would cause even more tension. Perhaps if I reached out to some people from the group privately, I’m really good (online) friends with a few of them.
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